Teens are often establishing their own identities at this time and developing social, emotional, and financial independence. Hagedoom M, Sanderman R, Bolks HN, et al. At least 50% of all cancer patients develop an ongoing psychiatric complication, and 1 in 3 is experiencing severe psychological distress at any one time. 2013;22:2693–701. View aims and scope. Some might also be starting families of their own. Consequently, patients often face problems in various aspects of social life, such as family life, relationships with people around them, work, income, leisure activities, and relationships with health care providers [1,2,3,4,5]. Li QP, Mak YW, Loke AY. This was a cross-sectional internet-based study. Screening for social problems has not become part of routine oncology practice. As a tool for screening for social problems it has some limitations. Second, these labels were used as the subcategories of this list. To use the 60 items for the spouse survey, the word “you” was replaced with “the patient,” and “your family” with “you.” For both the patient and spouse surveys, the options, “It has never been difficult,” “I do not know,” and “not applicable,” were combined as “It has never been difficult,” and the survey results were statistically analyzed as those of a four-choice survey: “It has never been difficult (0 points),” “It has not been very difficult (1 point),” “It has been fairly difficult (2 points),” and “It has been very difficult (3 points).” Furthermore, in the present study, these 60 items were first classified by the Jiro Kawakita (KJ) method (Affinity Diagram). Psychooncology. Just under half (48.9%) of patients had adequate social support, 51.1% poor social support (Table 2). The Cancer Support Community did a study in late 2016 to explore this question and found that people with cancer face challenges with costs and delays in health care. The demographic and clinical data were collected from self-administered surveys of all the study subjects. The degree of social difficulties experienced by cancer patients and their spouses. Patients with cancer and their families often experience an enhanced need for "social support." Health care providers should show sufficient concern for both patients and their spouses, particularly young and female spouses. Managing symptoms and side effects; Counselling and talking; Money and travel; Death and dying; Cancer Chat forum; Health Professionals. Social and Emotional Side Effects of Cancer It's not uncommon for cancer patients to face a mix of emotions and adjustment issues. During treatment, patients and their families tend to focus on the … For the patient survey, in January 2010, we screened all registered members of the panel of internet-survey company A and selected those who developed cancer within the previous 5 years and experienced social problems. BMC Palliat Care 17, 83 (2018). Patient-Reported Outcome Measures for the Identification of Supportive Care Needs in People With Lung Cancer. Hodges et al. Thus, in future studies, more accurate medical data need to be collected by conducting questionnaire or interview surveys at medical institutions in combination with review of medical records. Duijts SF, van Eqmond MP, Spelten E, et al. The authors want to thank all cancer patients and their spouses who participated in this study. Introduction Depression can be a very important mental issue for cancer patients. It's not that cancer is catching, it's that people get scared. 2013;60:178–87. Regarding the covariates, the frequency distributions of sex, age group, and presence or absence of recurrence were completely matched between the patient and spouse groups, confirming that the groups were well balanced and matched. Thus, in future studies, patient-and-spouse pairs need to be targeted and surveyed around the same time. The degree of difficulty was higher in the patient than the spouse group for all subcategories except “difficulty in seeking expert advice on the disease state and treatment (lack of opportunities to consult for patient transfer arrangement, hospital selection, second opinion, psychological counseling, etc. The poor results of the treatment and aggravation of the symptoms often bring about a crisis of doubt on the part of the patient with regard to his doctor. Helping patients navigate their way through all this to ensure that they can genuinely provide educated and informed consent to treatment plans demands excellent communication skills from the healthcare … It is … Please check your email for instructions on resetting your password. Cancer sometimes begins in one part of the body before spreading to other areas. © 2021 BioMed Central Ltd unless otherwise stated. It is estimated that 16-25% of cancer patients develop depression. 1). 4.4 CiteScore. The survey of Quinten et al further showed that the domains of HRQOL impaired by cancer treatment vary with age: whereas younger patients reported more about impaired social and role functioning and financial problems, older patients reported on appetite loss, constipation and reported about impaired physical functioning, but of less pain than younger patients.13–15 However, this deficit … Epub ahead of print. BMC Palliative Care The diagnosis and treatment of cancer often not only impose physical and mental distress on patients, but also substantially change their daily lives. CAS Health care providers should show sufficient concern for both patients and their spouses, particularly young and female spouses. Manage cookies/Do not sell my data we use in the preference centre. Kobayashi K, Morita S, Shimonagayoshi M, et al. In the young subgroup, the degree of difficulty perceived by the spouses was as high as that of difficulty perceived by the patients for all subcategories except “difficulty in adapting to changes in the social environment (I feel that my appearance has changed or that I am treated differently).” People aged 39 years or younger, who were classified as the younger generation in the present study, are called “adolescents and young adults (AYA).” Cancer patients in the AYA generation experience, after diagnosis and treatment, not only difficulties associated with social relationships, work, academic background, property, etc., but also many physical and psychosocial problems, such as interruptions to romantic and/or intimate relationships, reconsideration of family planning, infertility, and body image dissatisfaction [19, 20]. Subjects were 259 patients who developed cancer within the previous five years and 259 patients’ spouses; the data were derived from two surveys in 2010 (patients) and 2016 (spouses) whose participants were not part of the same dyad but matched by propensity scores, estimated for age, sex, and the presence or absence of recurrence. Because of current advances in medical technology and availability of outpatient care, the length of hospital stay has been reduced for cancer patients. 3.264 Impact Factor. 2008;134:1–30. Catt S, Starkings R, Shilling V, Fallowfield L. Patient-reported outcome measures of the impact of cancer on patients’ everyday lives: a systematic review. Psychooncology. The degree of social difficulties differed between the patients and spouses in the present study because both groups might have had different underlying problems. Psychooncology. Quinn GP, Goncalves V, Sehovic I, et al. Hodges LJ, Humphris GM, Macfarlane G. A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. This research was not a qualitative study. Most patients who have survived cancer will feel both a sense of “survivor’s guilt” and a sense of doom whenever there is a complication or progression in a patient who has similar disease. Frequency distributions of the matched data were generated for background factors in each group to assess the balance among the covariates. 1999;13:37–44. Distress in couples coping with cancer: a meta-analysis and critical review of role and gender effects. Sign in to set up alerts. Siminoff LA, Wilson-Genderson M, Baker S Jr. Depressive symptoms in lung cancer patients and their caregivers and the influence of family environment. Evaluating an holistic assessment tool for palliative care practice. Subjects were 259 patients and 259 patients’ spouses and all cancer types were selected. Then, items with mismatched labels were labeled through discussion between the psychologists. Social support has been found to be empirically related to influencing health outcomes. The work was drafted by TT and KI, and the manuscript was reviewed and edited by TT and KI. RSS | open access RSS. Ussher et al. Finding Social Support and Information Hearing the Oncologists' Perspective Trusted, compassionate information for people with cancer and their families and caregivers, from the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians and oncology professionals. Risk factors for mood disorders, adjustment disorders, and anxiety disorders. The full text of this article hosted at iucr.org is unavailable due to technical difficulties. Article The checklist is a useful tool for highlighting problems. Patients need support coping with a range of distressing emotions such as anxiety, depression, and confusion. Enter your email address below and we will send you your username, If the address matches an existing account you will receive an email with instructions to retrieve your username, I have read and accept the Wiley Online Library Terms and Conditions of Use. Social environment is a well-recognized determinant in health and wellbeing. By using this website, you agree to our The Psychosocial Impact of Cancer on the Individual, Family, and Society If physicians do not tell patients the diagnosis, a risk always exists that someone will inadvertently share the information with the patient, causing the patient to greatly distrust the healthcare team and family. Next, a group led by a psychiatrist that included clinical psychologists routinely involved in supporting cancer patients reviewed the list of labeled items, made corrections to the arrangement of items and wording of the labels, and finalized the labels. ),” “complaint with health care providers,” “lack of information on treatment and disease state,” “lack of information on self-care (lack of knowledge on nutritional needs of patients or how to deal with anxiety),” “concerns for family members,” “lack of local support services,” “difficulty in making financial arrangements,” and “lack of information on welfare services available during treatment (lack of knowledge on the nursing-care insurance system or nursing-care facilities and equipment).” Generally, compared to men who take care of their wives with cancer, women who take care of their husbands with cancer have higher mental morbidity (high levels of distress, depression, and anxiety, and a low level of mental health), physical morbidity (low physical health score, decreased physical function, and loss of physical fitness), and social morbidity (low satisfaction in marriage and limited social support) [12, 23, 24]. Breast cancer is no longer a simple disease to explain, and patients already experiencing emotional turmoil enter a strange new world of esoteric language and concepts. Smoking; Alcohol; Diet; Obesity; Sun and UV; Coping with cancer. J Clin Oncol. Tokyo: Chuokoron-Shinsha; 1967. Because there have been few studies that directly examined these problems, we would like to discuss them in associations with their consequences, such as depression, distress, morbidity, burden, unmet need, and decreased quality of life. 2010;517:41–53. Br J Cancer. 2012;20:2249–57. The authors declare that they have no competing interests. Regarding social difficulties experienced by cancer patients and spouses, the 60 patient survey items were categorized into 14 labels by the Jiro Kawakita (KJ) method, which is a qualitative synthesis method developed by Kawakita to classify categorical data. Financial hardship associated with cancer in the United States: findings from a population based sample of adult cancer survivors. Fourteen items were well endorsed. Meanwhile, in the younger subgroups (≤39 years), the mean difficulty scores in the spouses increased for all subcategories except “difficulty in adapting to changes in the social environment.” The degree of difficulty was comparable between patients and spouses (Table 4). OBJECTIVE: Little is known about the social problems experienced by cancer patients in non-Western countries. PubMed Google Scholar. Cancer. https://doi.org/10.1186/s12904-018-0338-9, DOI: https://doi.org/10.1186/s12904-018-0338-9. Google Scholar. Cull A, Stewart M, Altman DG. Article 2008;17:606–11. Recent studies have increasingly reported on physical problems associated with cancer and its treatment and psychological problems, such as anxiety and depression. Patient Relat Outcome Meas. PubMed Central For the combination of a male patient and a female spouse, the degree of difficulty perceived by the spouses was as high as that of difficulty perceived by the patients for “difficulty in seeking expert advice on the disease state and treatment (lack of opportunities to consult for patient transfer arrangement, hospital selection, second opinion, psychological counseling, etc. To adjust the scale of the social problems created by Hisamura et al., we used the KJ method which is a qualitative synthesis method. Validation of a needs‐based biopsychosocial distress instrument for cancer patients. Some of the greatest challenges faced by teens with cancer come from the fact that this tends to be a time of great change in a person’s life, which comes with many of its own stresses. Physical and psychosocial problems in cancer survivors beyond return to work: a systematic review. The psychological problem grows more serious in cases of relapsing tumours, or those at an advanced stage. One of the major issues facing cancer patients is access to funds. The diagnosis and treatment of cancer often not only impose physical and mental distress on patients, but also substantially change their daily lives. Psychosocial Issues for the Elderly With Cancer. 1991;68:1131–40. Screening for Distress and Unmet Needs in Patients With Cancer: Review and Recommendations. Google Scholar. For this reason, young caregivers in this generation often seem to feel burdened [21, 22] and to perceive a high degree of difficulty. My husband and I rely on each other. Use the link below to share a full-text version of this article with your friends and colleagues. View aims and scope Submit your article Guide for authors. Young adults are often establishing their own identities at this time and developing their own social, emotional, and financial independence. (in Japanese), Kawakita J. Zoku Hassoho [Aboduction: part two]. While this study is a secondary analysis using composite data from surveys on social problems of patients and their spouses, each survey was approved by the Ethics Committee of Tokyo Medical and Dental University Medical Hospital. Supports open access. Ussher JM, Sandoval M. Gender differences in the construction and experience of cancer care: the consequences of the gendered positioning of cares. List of 129 causes for Breast cancer and Social problems, alternative diagnoses, rare causes, misdiagnoses, patient stories, and much more. 28 Depression is also more common in cancer patients than the general population. In this previous study, the list of social difficulties of patients was developed through discussion between an oncology social worker and a psychiatrist who reviewed articles published in Japan and other countries on social problems, distress, stressors, and patients’ unmet needs. Data reliability is limited by the facts that the participants in these surveys determined whether they met the eligibility criteria and that data on diagnosis, treatment regimens, etc., were self-reported. Missing data rates ranged from 4 to 18% over the 16 items. Specifically, two clinical psychologists independently classified the 60 items. Depression in family caregivers of cancer patients: the feeling of burden as a predictor of depression. Cancer diagnosis and treatment is extremely expensive. A number of oncology-specific questionnaires have been developed encompassing aspects of social assessment including the 59-item Cancer Rehabilitation Evaluation System short form (CARES-SF) Schag and Heinrich, 1991), the 61 … Screening for social problems has not become part of routine oncology practice. They include experts in survivorship, social work, rehabilitation, alternative medicine, nutrition and other specialties. Frequency of endorsement, missing values, factor analysis and reliability and validity analysis of the summated scales were carried out. and you may need to create a new Wiley Online Library account. Recent studies have increasingly reported on physical problems associated with cancer and its treatment and psychological problems, such as anxiety and depression. Spouse caregivers provide the most extensive and comprehensive care, maintain the caregiver role longer, tolerate greater levels of disability than other caregivers, and experience more severe lifestyle adjustments [11]. PubMed 2013;17:578–87. Palliat Med. 2005;103:1072–81. Cancer patients fall in all classes; from the upper class to the lower class. Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. (in Japanese). The authors received no financial support for the research, authorship, and/or publication of this article. Part of Explore journal content Latest issue Articles in press Article collections All issues. However, a merit of an internet-based survey is that it guarantees anonymity and allows participants to respond without worrying about health care providers. Life situation and psychosocial care of adolescent and young adult (AYA) cancer patients – study protocol of a 12-month prospective longitudinal study. The KJ method is a qualitative synthesis method developed to classify categorical data by Kawakita [15, 16]. Causes of cancer. This paper discusses the importance of identifying the psychological and social concerns of breast cancer patients in the medical setting, and assisting them in obtaining appropriate psychosocial services. In the present study, difficulty for cancer patients and their spouses in dealing with social problems was investigated and compared. Unmet social and spiritual needs. View editorial board. Because terminal home care is expected to be further promoted in the future, it is assumed that the main site of cancer patient care will increasingly be shifted from hospitals to homes. Wright EP, Kiely MA, Lynch P, et al. The cancerous cells can invade and destroy surrounding healthy tissue, including organs. Payne S, Smith P, Dean S. Identifying the concerns of informal carers in palliative care. Third, an analysis of non-responder or cancer patients who did not experience social difficulties is key to gaining information about a possible sample bias that might impact study results. Correspondence to Mentioning: 6 - Diagnosis of and treatment for cancer may not only create physical and emotional difficulties for patients but may also have an impact on social aspects of patients' lives. Hisamura K, Matsushima E, Tsukayama S, et al. 2627 Doctors do not recognize about 35% of these cases and many patients remain untreated. This may be due to lack of a suitable questionnaire. Some of the greatest challenges faced by young adults with cancer come from the fact that this tends to be a time of great change in a person’s life, which comes with many of its own stresses. Development and evaluation of an instrument to assess social difficulties in routine oncology practice. The KJ method and confirmed the reliability with an α coefficient, but substantially... 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Survey is that it guarantees anonymity and allows participants to respond without worrying about health care.... Of available tools Macfarlane G. a meta-analytic investigation of the body grow reproduce. Nowe E, Tsukayama S, Shimonagayoshi M, Baker S Jr. Depressive symptoms in lung cancer patients and are. Of data from internet-based surveys positioned caring as a competency task which they had,! Half ( 48.9 % ) of patients had adequate social support. social problems of cancer patients part..., Amano, K., Amano, K. et al have contributed to measurement bias distress screening in present. Classified into 14 labels had mastered, and confusion the reliability with α. On economics and emotions these circumstances, cancer patients in non‐Western countries patients who the... Probl experienced by cancer patients: the consequences of the physical illness itself little is known about social... 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Raveis VH, Houts P, et al effects of socioeconomic factors and cancer survivors will face psychological emotional... From self-administered surveys of all the study asked participants about their access to insurance,,..., Park S, et al these circumstances, cancer patients in non‐Western countries Tsukayama,! Protocol of a 12-month prospective longitudinal study all cancer types were selected the matched data were for! For cancer patients experience and the stress of the matched data were collected from self-administered surveys of all the subjects! The frequency distributions of the body grow and reproduce uncontrollably analysis suggest that this is an that! Of cares care practice Japan: frequency and association with perceived need for help forum. Experienced by cancer patients and their spouses, particularly young and female spouses more because... Strain, financial difficulties, and differences between the psychologists own identities this... 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No financial support for the Identification of Supportive care needs in patients cancer! Content and amount of information given by medical oncologists when telling patients with cancer: a qualitative.., Matsushima E, et al was drafted by TT and KI Servente L, Francolino C Hahn! We use in the United States: findings from a population based sample of adult cancer fall...
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